-
The doctor said my baby could have down syndrome
A few weeks ago a phone call from my amazing OBYN turned my world upside down. She said that the blood tests, she had ordered, came back showing me as “high risk” for Down syndrome. My baby could have Down syndrome. My little Jonah boy had a 1 in 50 chance of being born with an intellectual impairment and/or physical abnormalities. She asked me to arrange an appointment to have diagnostic tests done so that we can know for sure. But I immediately knew that I was NOT interested in diagnostic tests. I did NOT want to “know for sure” if there was something wrong with my baby. There was just no…
-
Curly update: How to shine your light (with a needle in your arm)
It’s Friday and I could not be more happy that this week is coming to an end. Our Curls had to go for blood tests again this week and as you know, blood draw days are MEH! But this girl has the “shine your light” super power, I’m convinced!
-
Blood draw days are meh
So, as you know, my toddler has a condition called Congenital Hypothyroidism, which means that her thyroid gland is under performing. We now know that it’s because she only has half a thyroid gland. This is a big deal because tiny bodies need thyroid hormones to tell their brains and other parts when to develop. So if the deficiency is discovered too late (or if baby does not get the proper dosage of meds) it could cause slow development, autisim, poor muscle growth and the lack of mental growth. Because of this she has, what I’ve coined, ‘blood draw days’ every few months.
-
Congenital Hypothyroidism: “Sorry, there is something wrong with your baby…”
This time last year I was probably sitting on my bed bawling my eyes out and feeling pretty hopeless. If you remember I had recently celebrated the 1st birthday of our baby girl (check out my trip down memory lane ya’ll, it’s quite scenic) and that would mean a year ago, she was about a week old. Well, at a few days old, we were summoned to her pediatricians office where he delivered world altering news with a steady look on his face: “The test results came back. Your baby has been diagnosed with Congenital Hypothyroidism.” The rest was a blur as I tried to hold back the tears. My…
